Good Articles and Blogs about EDS

Articles and Blogs about EDS

Blogs:

This is a great blog by a women who has EDS and has 2 children with EDS. It is a very good blog and very well written.

http://doesntsurpriseme.blogspot.ca

This is a good blog written by a women with a sense of humor and EDS.

http://illnesssucksfindfunny.blogspot.com.au

A blog by a women with EDS that explains things very well:

http://danielledaviseds.blogspot.com.au/

Another good blog about live with illness and EDS:

http://hideandseekdisabilities.blogspot.com.au

Another blog about EDS:

http://ehlersdanlos.blogspot.com.au/

A great blog written by a mother of an EDS patient:

http://slingsandarrowsofoutrageousfortune.wordpress.com

A blog that I have been writing about my EDS:

rachaelshealthjourney.blogspot.com

This is a great blog:

http://livingbendy.blogspot.com.au/

Another blog about EDS:

http://becauseitallmatters1909.blogspot.com.au/

Another really great blog about EDS:

http://jesshaseds.blogspot.com.au/

This blog is written by a 24 year old girl with EDS:

http://flexabilityandcreativity.blogspot.com.au/

I love this blog about EDS:

http://b-u-b-b-l-e-girl.blogspot.com.au

A very positive and uplifting blog:

http://invisiblezebras.blogspot.com.au/

Another good blog:

http://edsshegetitfromhermomma.blogspot.com.au/

Everyday life with EDS:

http://fjkellyedsetc.blogspot.com.au/

A great blog about a girls life and her health:

http://owlsdragonsstuff.blogspot.com.au/

A women who lives in Tasmania's life with EDS and her childrens life:

http://somedaywewillsleep.com

A blog by Nadia- the creator of EDSers.com

http://nadialivingwitheds.wordpress.com/

A good blog about EDS by a young woman:

http://gimpyzebra.wordpress.com/

A blog about a woman with EDS:

http://crunchymamasoggytown.blogspot.com.au/

A very good blog from a woman with EDS:

http://charleeehlersdansol.blogspot.com.au

A blog a woman writes about her son's EDS and other medical complications:

http://strydersstory.com

A blog that sees the humor in EDS:

http://ehlersdanloszebra.tumblr.com

A blog written by a mother of an EDS child and a widow of a EDS husband:

http://ddvaughan.wordpress.com/

Articles:

This is a article about pregnancy in EDS:

http://www.hypermobility.org/pdfs/pregnancy_HMS_HEDS.pdf

An Educators Guide and a Parents Guide to EDS:

http://specialchildren.about.com/gi/o.htm?zi=1/XJ&zTi=1&sdn=specialchildren&cdn=parenting&tm=131&f=10&su=p504.6.342.ip_&tt=2&bt=1&bts=1&zu=http%3A//www.ednf.org/images/Publications/guide.pdf

A Wallet Card:

http://www.ednf.org/documents/walletcard2010S.pdf

This is a support group for the UK but it has some great tips for everyone living with EDS:

http://www.ehlers-danlos.org

A article about a family with EDS:

http://articles.chicagotribune.com/2008-03-20/news/0803191147_1_social-worker-deputy-sheriff-respiratory-infections

Eye care in EDS:

http://www.totaleyecare.com/Diana-Driscoll-Ehlers-Danlos-Eye-Doctor-HANDOUT.pdf

http://www.totaleyecare.com/ocular-symptoms-ehlers-danlos-syndrome.htm

Tips on having surgery with EDS:

http://arthritisinsight.com/medical/surgery/eds.html

A article about me and a letter I wrote:

http://therapyfocus.org.au/news/rachael-speaks-out.aspx

A good humorous website about EDS:

http://ehlersdanloszebra.tumblr.com/page/3

A article on EDS:

http://www.maxim.com/upkeep/bodily-harm-what-the-hell-ehlers-danlos-syndrome

An article about the health problems associated with EDS: http://www.helium.com/items/2367660-health-problems-associated-with-ehlers-danlos-syndrome

Youtube Channels and Videos:

A Youtube video done on my life with EDS in 2012:

http://www.youtube.com/watch?v=R0Dwy7bRXc4&feature=share

A video about a girl called Megan:

http://www.youtube.com/watch?v=FMwcf4TDd9c

A Youtube Channel by a girl with EDS:

http://www.youtube.com/user/vivisonga1111

A woman with EDS who has a good outlook on life:

http://www.youtube.com/user/misscurlycarrie

A channel by Bethanie Thorn.

http://www.youtube.com/user/bethaniesbattle

A channel by a doctor who is also a sufferer of EDS:

http://www.youtube.com/user/PrettyIll1

A channel by a young woman with EDS:

http://www.youtube.com/user/DarkWaterfall

A boy with EDS's Youtube Channel:

http://www.youtube.com/user/Simplygiant

A woman with EDS:

http://www.youtube.com/user/elizabethlea27

A youtube channel by Nadia:

http://www.youtube.com/user/LivingWithEDS

This is a video channel by a good friend Kitty. She has done 2 awesome videos:

http://www.youtube.com/user/xpsykoxpixiex

A great channel!

http://www.youtube.com/user/FragileWithSpunk

A great channel by someone I am proud to call my friend:

http://www.youtube.com/user/flygirl2032

A channel by Danielle Davis:

http://www.youtube.com/user/vegandanielle

A video about how a family is staying active with EDS:

http://www.youtube.com/watch?v=PunQu-bId1M

Another good video:

http://www.youtube.com/watch?v=tll6_zyVxzU

A great video explaining how we feel:

http://www.youtube.com/watch?v=8Q4juCB2GeU

Facebook Pages:

Pages by Dr. Brad T Tinkle

http://www.facebook.com/pages/Issues-and-Management-of-Joint-Hypermobility-Book-by-Dr-Brad-T-Tinkle/66266231619

http://www.facebook.com/pages/Joint-Hypermobility-Handbook/142031602483491?ref=stream

http://www.facebook.com/pages/Dr-Brad-T-Tinkle/115747231807914?ref=stream

Lucy's Light: http://www.facebook.com/pages/Lucys-Light/505813532772737?ref=stream

Anabelle's Challenge with Vascular Ehlers Danlos Syndrome: http://www.facebook.com/AnnabellesChallenge?ref=stream

Stryders Story: http://www.facebook.com/StrydersStory?ref=stream

Amy Coleman Ehlers Danlos Awareness: http://www.facebook.com/AmyColemanEhlersDanlosAwareness?ref=stream

Help Rachel Breathe: http://www.facebook.com/helprachelbreathe?ref=stream

HypermobilO-T: http://www.facebook.com/hypermobilot?ref=stream

Ehlers Danlos Awareness: http://www.facebook.com/pages/Ehlers-Danlos-Awareness/96416751925?ref=stream

Ehlers- Danlos Syndrome: http://www.facebook.com/pages/Ehlers-danlos-syndrome/224164654326265?ref=stream

Ehlers Danlos Syndrome: http://www.facebook.com/pages/Ehlers-Danlos-Syndrome/222774921080820?ref=stream

Ehlers Danlos Syndrome: http://www.facebook.com/pages/Ehlers-Danlos-Syndrome/151498888204293?ref=stream

Ehlers Danlos Syndrome Type 4: http://www.facebook.com/pages/ehlers-danlos-syndrome-type-4/299720992870?ref=stream

Ehlers Danlos Syndrome Awareness Products: http://www.facebook.com/EDSAWARE?ref=stream

Doesn't Surprise Me: http://www.facebook.com/doesntsurpriseme?ref=stream

Sleepless Nights: http://www.facebook.com/somedaywewillsleep?ref=stream

Bethanie's Battle: http://www.facebook.com/BethaniesBattle?ref=stream

Love, Zebras and Ehlers Danlos Syndrome: http://www.facebook.com/LoveZebrasAndEDS?ref=stream

Ehlers Danlos Syndrome ~ Don't Call me Ma'am: http://www.facebook.com/EhlersDanlosSyndromeDontCallMeMaam?ref=stream

Ehlers Danlos Syndrome Awareness: http://www.facebook.com/pages/Ehlers-Danlos-Syndrome-Awareness/127127410673578?ref=stream

Chronic Perserverance: http://www.facebook.com/chronicperseverance?ref=stream

Erica Crawford's Struggle with Ehlers Danlos Syndrome: http://www.facebook.com/pages/Erika-Crawfords-struggle-with-Ehlers-Danlos-Syndrome/276781769094833?ref=stream

Ehlers Danlos Support UK: http://www.facebook.com/pages/Ehlers-Danlos-Support-UK/153693304682742?ref=stream

Ehlers Danlos Syndrom. My New Lifestyle: http://www.facebook.com/EhlersDanklosSyndromForeningNewLiveStyle?ref=stream

Ehlers Danlos Syndrome Awareness Page: http://www.facebook.com/AlisasZazzleShop?ref=stream

The Zebra Shop- EDS Awareness Tees: http://www.facebook.com/pages/The-Zebra-Shop-EDS-Awareness-Tees/131409636947570?ref=stream

Life as a Zebra: http://www.facebook.com/lifeasazebra?ref=stream

I have a chronic illness it sucks but I find the funny: http://www.facebook.com/illnesss.cksfindfunny?ref=stream

Ehlers Danlos Syndrome Connection: http://www.facebook.com/EDS.Connect?ref=stream

SillySickChick's Ehlers Danlos Syndrome and Dysautonomia Page: http://www.facebook.com/EDSandDys?ref=stream

Living with Gastroparesis and Ehlers Danlos Syndrome: http://www.facebook.com/Gastroparesis.EDS?ref=stream

Ehlers Danlos Syndrome Awareness: http://www.facebook.com/Ehlers.Danlos?ref=stream

Raising Awareness for Ehlers Danlos Syndrome (EDS): http://www.facebook.com/RaisingAwarenessForEhlersDanlosSyndromeeds?ref=stream

Shailyn's Struggle with Ehlers Danlos Syndrome Hypermobility Type and POTS: http://www.facebook.com/pages/Shailyns-Struggle-with-Ehlers-Danlos-Syndrome-Hypermobility-Type-and-POTS/276200599067012?ref=stream

Ehlers Danlos Syndrome Network C.A.R.E.S: http://www.facebook.com/pages/Ehlers-Danlos-Syndrome-Network-CARES-Foundation/107023919382477?ref=stream

Ehlers Danlos Syndrome Awareness Month: http://www.facebook.com/pages/Ehlers-Danlos-Awareness-Month/180899421960002?ref=stream

Ehlers Danlos Syndrome won't stop me: http://www.facebook.com/pages/Ehlers-Danlos-Syndrome-wont-stop-Me/229462253813077?ref=stream

Raise Awareness Ehlers Danlos Syndrome: http://www.facebook.com/pages/Raise-awareness-Ehlers-Danlos-syndrome/292136987491682?ref=stream

Ehlers Danlos Syndrome: http://www.facebook.com/pages/Ehlers-danlos-syndrome/447947005219278?ref=stream

The Super B Foundation- EDS Support Group: http://www.facebook.com/TheSuperBFoundationEdsSupportGroup?ref=stream

Chronic Awareness and Encouragement: http://www.facebook.com/ChronicAwarenessAndEncouragement?ref=stream

EDS Ring Splints: http://www.facebook.com/edsjewelrycreations?ref=stream

Alexa Simmons's Memorial Page: http://www.facebook.com/pages/Alexa-Simmonss-Memorial-Page/171124806305002?ref=stream

Fight to be Upright: Charlie Smith's Battle with Ehlers Danlos Syndrome: http://www.facebook.com/CharliesFightToBeUpright?ref=stream

The Hypermobility Syndrome Association: http://www.facebook.com/pages/The-Hypermobility-Syndrome-Association/111251562248518?ref=stream

Ehlers Danlos Syndrome Type 3: http://www.facebook.com/pages/Ehlers-Danlos-Syndrome-type-3/126241787394071?ref=stream

Ehlers Danlos Syndrome National Foundation: http://www.facebook.com/pages/EHLERS-DANLOS-NATIONAL-FOUNDATION/294028895335?ref=stream

Center for Ehlers Danlos Syndrome Alliance: http://www.facebook.com/cedsaorg?ref=stream

Ehlers Danlos Syndrome Hypermobility Warrior: http://www.facebook.com/pages/Ehlers-danlos-hypermobility-warrior/194311437313309?ref=stream

A guide to living with Hypermobility Syndrome: http://www.facebook.com/pages/A-Guide-to-Living-with-Hypermobility-Syndrome/147937008618886?ref=stream

Destiny's Battle: http://www.facebook.com/Forever.Fighting.Destiny?ref=stream

Ehlers Danlos and Joint Hypermobility Australia: http://www.facebook.com/EDSAustralia?ref=stream

ConnecTeD Foundation Inc: http://www.facebook.com/connectedfoundation?ref=stream

Pam's Fight for a Cure: http://www.facebook.com/pages/Pams-fight-for-a-cure/369969569763424?ref=stream

EDSer's United: http://www.facebook.com/pages/EDSers-United/181566845221307?ref=stream

A Day in the Life of Miss Ashley: http://www.facebook.com/ADayInTheLifeOfMissAshley?ref=stream

Ehlers Danlos Syndrome Awareness: http://www.facebook.com/pages/Ehlers-Danlos-Syndrome-Awareness/283501488417486?ref=stream

Stickman Communications by Hannah Ensor: http://www.facebook.com/pages/Stickman-Communications-by-Hannah-Ensor/109964615691553?ref=stream

Straps Therapeutic Braces: http://www.facebook.com/pages/Straps-Therapeutic-Bracing-Garments/146784188721280?ref=stream

Hide and Seek Disabilities: http://www.facebook.com/pages/HideAndSeek-disabilities/202330346506387?ref=stream

Ehlers Danlos Syndrome Awareness:
http://www.facebook.com/pages/Ehlers-Danlos-Syndrome-Awareness/317918201647095?notif_t=fbpage_fan_invite